It has been a while since I have posted. As usual I have to do things backward. I didn't have too much trouble with the chemotherapy. By that I mean I had the normal side effects and never had to stop treatment. Taking estrogen blockers, however, has been a whole different story. After the aromasin I was put on tomoxifin. This caused severe spasms of all my muscles. I could hardly walk. Any movement was painful. I also felt like I was back on chemotherapy because my fatigue had fatique. I was exhausted all of the time.
At the end of September Dr. Romer agreed to take me off of the tomoxifin for three weeks to see how I did. There was an immediate improvement. After 3 weeks I was started on Fareson. This drug is not used in the US very much according to the info online about it. I decided to take it at night to see if that made a difference. It has a whole host of nasty side effects but I'm tolerating it well. My feet and ankles swell up like balloons but I have a lot more energy. My muscles and joints hurt at a pre-chemo level, fibromyalgia is still a factor. I feel like I am finally starting to get my life back.
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